9, ISBN: 9789048194858
In our etiologic research, we epidemiologists need to leave behind the concepts of 'cohort' study and 'case-control' study and adopt that of the etiologic study as the singular substitute… mais…
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ISBN: 9789048194858
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ISBN: 9789048194858
This inclusive text is the first publication to address rare diseases as a public health problem. The work analyzes the constraints on epidemiological research at the same time as supplyi… mais…
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2010, ISBN: 9789048194858
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2010, ISBN: 9789048194858
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9, ISBN: 9789048194858
In our etiologic research, we epidemiologists need to leave behind the concepts of 'cohort' study and 'case-control' study and adopt that of the etiologic study as the singular substitute… mais…
ISBN: 9789048194858
Medicine & Public Health; Epidemiology; Human Genetics; Health Promotion and Disease Prevention Biobank, Epidemiologic Research, Health Economics, Human Genetic, Orphan Drugs, Public Heal… mais…
ISBN: 9789048194858
This inclusive text is the first publication to address rare diseases as a public health problem. The work analyzes the constraints on epidemiological research at the same time as supplyi… mais…
2010, ISBN: 9789048194858
[ED: 1], Auflage, eBook Download (PDF), eBooks, [PU: Springer-Verlag]
2010, ISBN: 9789048194858
2010, eBook Download (PDF), eBooks, [PU: Springer Netherland]
Dados bibliográficos do melhor livro correspondente
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Dados detalhados do livro - Rare Diseases Epidemiology
EAN (ISBN-13): 9789048194858
ISBN (ISBN-10): 9048194857
Ano de publicação: 2010
Editor/Editora: Springer Netherland
535 Páginas
Língua: eng/Englisch
Livro na base de dados desde 2011-11-18T17:43:29+00:00 (Lisbon)
Página de detalhes modificada pela última vez em 2023-07-25T08:34:32+01:00 (Lisbon)
Número ISBN/EAN: 9048194857
Número ISBN - Ortografia alternativa:
90-481-9485-7, 978-90-481-9485-8
Ortografia alternativa e termos de pesquisa relacionados:
Autor do livro: grof, posada, groft
Dados da editora
Autor: Manuel Posada de la Paz; Stephen C. Groft
Título: Advances in Experimental Medicine and Biology; Rare Diseases Epidemiology
Editora: Springer; Springer Netherland
542 Páginas
Ano de publicação: 2010-09-08
Dordrecht; NL
Impresso / Feito em
Língua: Inglês
Not available, publisher indicates OP
EA; E107; eBook; Nonbooks, PBS / Medizin/Allgemeines; Epidemiologie und medizinische Statistik; epidemiological; Human Genetic; Rare Diseases; epidemiological methods; Biobank; Epidemiologic Research; public health problem; social epidemiology; cancer; Health Economics; prevention; Public Health; epidemiology; Orphan Drugs; B; Epidemiology; Human Genetics; Health Promotion and Disease Prevention; Epidemiology; Medical Genetics; Health Promotion and Disease Prevention; Biomedical and Life Sciences; Genetik, Medizin; Public Health und Präventivmedizin; BB
Rare Diseases.- Rare Diseases – Avoiding Misperceptions and Establishing Realities: The Need for Reliable Epidemiological Data.- Methods and Approaches.- Rare Diseases Epidemiology Research.- Evidence-Based Medicine and Rare Diseases.- Prevention, Diagnosis and Services.- The Importance of Case Reports in Advancing Scientific Knowledge of Rare Diseases.- Patient Registries: Utility, Validity and Inference.- Biobanking in Rare Disorders.- Evaluation of the Validity and Utility of Genetic Testing for Rare Diseases.- Population-Based Surveillance for Rare Congenital and Inherited Disorders: Models and Challenges.- Statistical Methods for the Geographical Analysis of Rare Diseases.- Clinical Trials and Rare Diseases.- Pharmacoepidemiology.- A Regulatory Overview About Rare Diseases.- Economics and Social Epidemiology.- Economic Considerations in the Provision of Treatments for Rare Diseases.- Rare Diseases Social Epidemiology: Analysis of Inequalities.- Quality of Life and Rare Diseases.- Cost of Illness and Economic Evaluation in Rare Diseases.- Epidemiology of Group of Rare Diseases.- The Burden of Rare Cancers in Europe.- Hereditary Channelopathies in Neurology.- Osteochondral Diseases and Fibrodysplasia Ossificans Progressiva.- The Prevalence of Congenital Anomalies in Europe.- Rare Autoimmune Diseases.- Epidemiology of Rare Anaemias in Europe.- Inherited Metabolic Rare Disease.- The Contribution of Rare Diseases to Understanding the Epidemiology of Neurodevelopmental Disabilities.- Policy and Ethics Issues in Rare Diseases.- Creating a European Union Framework for Actions in the Field of Rare Diseases.- National Plans and Strategies on Rare Diseases in Europe.- Ethical Aspects on Rare Diseases.- Patient Organizations Role.- Advocacy Groups and Their Role in Rare Diseases Research.It is the first book edited on Rare Diseases Epidemiology Develops a comprehensive approach to the rare diseases epidemiological problems Teach the best knowledge currently available Opens future perspectives for health planning and decision making Provides a general framework for physicians, public health experts and basic researchers
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